Janine Tehovnik, Associate Professor Lezanne Ooi, Dr Neville Ng, Dr Tracey Berg, Nyree Saxby, Lyndel Hayes, Ryan Park and Julie Ferguson.

The Great Illawarra Walk raises over $150,000 for the Saving Chloe Saxby campaign

In a wonderful show of community spirit, The Great Illawarra Walk has raised over $150,000 for the Saving Chloe Saxby campaign. 

The proceeds will be directed towards research conducted by Associate Professor Lezanne Ooi and her research team, who have been working on potential new treatments for Chloe Saxby and another girl, Holly Burns.

Chloe and Holly suffer from Vanishing White Matter Disease (VWMD), a rare neurodegenerative condition that affects the nervous system, causing problems with movement and mental functioning.

Over 800 walkers registered for this year’s event to take on the challenging 40 km trek between Shellharbour and The Headlands Hotel in Austinmer. It was the largest participation in the history of the Walk.

An intrepid team of IHMRI researchers and operations staff, and their families, joined the rainbow procession of walkers to help raise funds and awareness for VWMD. 

Like all good research, it was a collaborative effort led by the indomitable Associate Professor Lezanne Ooi, who walked the whole way!! Well done, Lezanne. 

Thank you

IHMRI extends our warmest thanks to everyone involved in the logistics, planning and organisation of the Walk. It was a great privilege to be involved.

IHMRI would like to thank all the researchers and operations staff who helped make this such a fun and special day. 

  • Rachelle Balez
  • Dr Tracey Berg 
  • Dr Mauricio Castro E Castro Cabral Da Silva
  • Linda Deitch
  • Dzung Do-Ha
  • Dr Martin Engel and family
  • Lyndel Hayes
  • Dr Jean Marshall and family
  • Dr Neville Ng
  • Associate Professor Lezanne Ooi
  • Julie Ferguson
  • Kara Lamond and family
  • Dr Claire Stevens and family
  • Janine Tehovnik

We would also like to thank all the people who donated to Team IHMRI walkers.


Team IHMRI exceeded our fundraising goal.

You can still support Team IHMRI by making a donation on The Great Illawarra Walk website by 17 March.

Photo gallery

Related stories

Fundraising efforts continue for VWMD research at IHMRI

Media coverage

Nine News Illawarra

Media contact

Louise Negline, Communications Coordinator

t: 4221 4702

m: 0417 044 867

e: louisenegline@ihmri.org.au

Top photo: Janine Tehovnik, Associate Professor Lezanne Ooi, Dr Neville Ng, Dr Tracey Berg, Nyree Saxby, Lyndel Hayes, Ryan Park and Julie Ferguson. Photo by Trudy Simpkin.

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