Support stem cell research into Vanishing White Matter Disease

Put your walking shoes on. The Great Illawarra Walk is back. 

This wonderful community event will raise funds for the Saving Chloe Saxby campaign. Chloe Saxby suffers from Vanishing White Matter Disease, a rare neurodegenerative condition that affects the nervous system, causing problems with movement and mental functioning.

The proceeds will be directed towards research conducted by Dr Lezanne Ooi and her research team, who have been working on potential new treatments for Chloe Saxby and another girl, Holly Burns.

About the Walk

This year the Great Illawarra Walk is a one-day 40 km trek between Shellharbour Village and The Headland Hotel in Austinmer.

You can complete the whole route, or just a section. It is a fun and healthy day out for the family, with lots of support along the way.

Read more about The Great Illawarra Walk.


IHMRI researchers and operations staff will be getting together for the Walk to support Chloe and her family.

To be a volunteer walker on Team IHMRI, register here and select Team IHMRI.

If you’re unable to make it on the day, you can still support Team IHMRI by making a donation.

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Join Team IHMRI!